First of all, I’d like to offer my apologies. We didn’t mean to leave the blog at such a bad stopping point! (As a matter of fact, with the whirlwind few days we had following that post, we didn’t even remember. Whoops!)

And so today, seven weeks post-op, I’d like to shine a little light on where we are now.

When we left you, Chase had An Episode (that’s how I refer to it in my mind.) That night, his oxygen saturation levels plummeted. It happened several times, as he began to fall asleep. Brandon and I spent a sleepless night glued to the monitors, watching with our hearts in our throat.

Luckily, after the initial scare it didn’t happen again. The general consensus was that exhaustion coupled with a cocktail of pain medications (especially Lortab) caused Chaseton to fall asleep too quickly, making him unable to regulate his breathing and causing his oxygen levels to drop. Chase spent an extra day in the Step-Down unit being observed closely by his doctors (and his great nurse, John!) before we were released on Friday – exactly one week post Nikaidoh.

From then on out, it’s been smooth sailing. (Knock on wood.) Chase was quickly weaned from his blood-pressure medicine, and then the lasiks (which prevent fluid buildup around his heart.) His post-operative xrays and echocardiagram looked great, and we are now at bi-monthly cardiology appointments. In fact, after this next one we hope to stretch the time to every six months!

He has been cleared for daycare and flag football (if only his coordination would allow it! 😉 ) and we really couldn’t be happier with his progress. He has been gaining weight and getting taller, and we hope that this manifest in his growth chart (as he is still quite small for his age.) Just as exciting, he is fast approaching his first birthday!

Which, of course, will warrant a post all of it’s own.

Until later, I thank you all for your patience waiting for this post! Happiness and good health ❤